We are really in a race against the clock. He is doing really well right now, but we know that the muscles are dying a little bit every day.

War needs to be waged on this disease. Twenty years ago if a child was diagnosed with cancer it was a death sentence; now there's an 80 percent cure rate. I just think if there's enough awareness raised and we move research ahead, something can be done.

It's kind of narrowed the gap between what he can do and what his siblings and peers can do.